Kvaliteta zdravstvenog sustava iz perspektive gluhoslijepih osoba

master's thesis

• Title (english): Quality of the Healthcare System from the Perspective of Deafblind Individuals
• Author: Ana Sopta
• Mentor: Lovorka Brajković (mentor)
• Committee member: Vanja Kopilaš (predsjednik povjerenstva)
• Committee member: Dora Korać (član povjerenstva)
• Committee member: Lovorka Brajković (član povjerenstva)
• Granter: University of Zagreb; Faculty of Croatian Studies; (Department of Psychology); Zagreb
• Defense date and country: 2024-09-19, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Psychology

Abstract

U središtu provedenog istraživanja bio je zdravstveni sustav u Republici Hrvatskoj i kvaliteta istog iz perspektive gluhoslijepih osoba. Gluhosljepoća je kombinacija oštećenja vida i sluha, a zbog čega osobe s ovim oštećenjem imaju poteškoće u komunikaciji, mobilnosti i informiranju. Prema podacima iz 2023. godine u Hrvatskoj ima 166 gluhoslijepih osoba, a svatko od njih treba prevoditelja kojih nema dovoljno da se pokriju potrebe ove zajednice. U istraživanju je sudjelovalo šest gluhoslijepih osoba, a ujedno i članova Udruge gluhoslijepih osoba grada Zagreba. Svaki sudionik imao je svog prevoditelja koji mu je pomagao u komunikaciji, a kao metoda istraživanja korištena je fokus grupa za koju je osmišljen protokol pitanja. Sudionici su okupljeni u prostorima lokalne udruge gdje je provedeno istraživanje. Rezultati ovog istraživanja ukazuju na vrlo izraženo nezadovoljstvo gluhoslijepih osoba kad je riječ o zdravstvenom sustavu. Prvenstveno, kao glavni problem ističu lošu organizaciju te vrlo izražene poteškoće u komunikaciji sa zdravstvenim osobljem koje im olakšavaju prevoditelji. Ipak, nerijetko se događa da prevoditelje u bolnicama, prilikom pregleda i zahvata, odvoje od korisnika tj. pacijenta upravo zbog manjka razumijevanja za ovu zajednicu. Nastavno na to, zdravstveni sustav nije prilagođen osobama sa specifičnim senzoričkim oštećenjima što se očituje kroz nepristupačnost i loš pristup pacijentu. Iako svjesni dobrih strana u sustavu kao i dobrih ljudi, kod gluhoslijepih prevladavaju negativna iskustva i poteškoće s kojima se suočavaju. Kako bi se situacija poboljšala, predlažu edukacije zdravstvenog osoblja u vidu učenja hrvatskog znakovnog jezika te stvaranje registra s educiranim osobljem u svakoj bolnici.

Abstract (english)

The focus of this research was the healthcare system in the Republic of Croatia and its quality from the perspective of deaf-blind individuals. Deafblindness is a combination of vision and hearing impairment, which causes difficulties in communication, mobility, and access to information for those affected. According to 2023 data, there are 166 deaf-blind individuals in Croatia, each of whom needs an interpreter; however, there is a shortage of interpreters to meet the community's needs. The research involved six deaf-blind individuals, also members of the Association of Deaf-Blind Persons of the City of Zagreb. Each participant had an interpreter to assist them in communication, and a focus group method was used for the research, with a protocol of questions designed for this purpose.
The participants were gathered on the premises of the local association where the study was conducted.
The findings of this research indicate substantial dissatisfaction among deaf-blind individuals regarding the healthcare system. The primary issues identified include poor organization and significant communication barriers with healthcare staff, which interpreters help to mitigate. Nonetheless, interpreters are frequently separated from the patients during examinations and procedures in hospitals due to a lack of understanding of this community's needs.
Consequently, the healthcare system is not adequately adapted to individuals with specific sensory impairments, as evident in its inaccessibility and suboptimal patient care approach. Although the deaf-blind community acknowledges the positive aspects of the system and the compassionate individuals within it, their overall experiences are predominantly negative, marked by numerous difficulties. To foster improvements, they suggest educating healthcare professionals to learn Croatian sign language and creating a registry of trained personnel in every hospital.

• Keywords: gluhosljepoća; gluhoslijepe osobe; osobe s invaliditetom; zdravstveni sustav; kvaliteta zdravstvenog sustava
• Keywords (english): deafblindness; deafblind individuals; persons with disabilities; healthcare system; quality of the healthcare system
• Language: croatian
• URN:NBN: urn:nbn:hr:111:287624
• Study programme: Title: Psychology (Single Major, Science Stream); Study programme type: university; Study level: graduate; Academic / professional title: sveučilišni/a magistar/magistra psihologije (sveučilišni/a magistar/magistra psihologije)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Open access
• Created on: 2024-09-25 10:52:09