Narativna analiza kvalitete života gluhoslijepih osoba

master's thesis

• Title (english): Narrative Analysis of Life Quality of Visual and Hearing Impaired Persons
• Author: Petra Vuković
• Mentor: Marija Brajdić Vuković (mentor)
• Committee member: Marija Brajdić Vuković (predsjednik povjerenstva)
• Committee member: Dario Pavić (član povjerenstva)
• Committee member: Irena Cajner Mraović (član povjerenstva)
• Granter: University of Zagreb; Faculty of Croatian Studies; (Department of Sociology); Zagreb
• Defense date and country: 2018-07-13, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Sociology

Abstract

Ovaj rad bavi se kvalitetom života gluhoslijepih osoba, točnije onim dijelom kvalitete života koji se bavi (ne)jednakostima šansi s kojima se gluhoslijepe osobe susreću. Prema tome, u ovom istraživanju kvalitetu života definiram kao skupinu čimbenika i aktivnosti koji znatno utječu na zadovoljstvo i životne uvjete gluhoslijepih osoba, a to su: obrazovanje, zaposlenje, aktivnosti tokom dana, odnosi (s kolegama, obitelji, partnerima, prijateljima), socijalna skrb, kvaliteta rada matične udruge, funkcioniranje i samostalnost, diskriminacija i nasilje, pristupačnost javnih sadržaja, problematika zapošljavanja i informiranost drugih o pravima i potrebama gluhoslijepih osoba. Iskustva gluhoslijepih osoba o (ne)jednakostima šansi kroz navedene čimbenike i aktivnosti istražene su metodom narativne analize, koja se provela polustrukturiranim intervjuima. Priče sudionika su rekapitulirane u narative prema Labovljevom modelu te su se nakon toga narativi usporedili i podijelili u 5 tipova. Svaki tip obuhvaća one sudionike koji se poklapaju prema padu, rastu ili stagnaciji kvalitete života te prema iskustvu društvenosti. Na samom kraju, odgovorena su pitanja (1) kakva su životnopovijesna iskustva gluhoslijepih osoba povezana s čimbenicima i aktivnostima kvalitete života i (2) koje su prepreke i problemi povezani s njihovim invaliditetom u kontekstu jednakosti šansi za kvalitetan život.

Abstract (english)

This thesis deals with quality of life of deafblind people, more precisely with the part of the quality of life that deals with the (in)equality of opportunities that deafblind people encounter. Therefore, in this research I define the quality of life as a group of factors and activities that significantly affect the satisfaction and living conditions of deafblind people, namely: education, employment, activities during the day, relationships (with colleagues, family, partners, friends) social care, quality of work of the parent association, functioning and independence, discrimination and violence, accessibility of public content, employment issues and public awareness about the rights and needs of deafblind people. The experiences of deafblind people on (in)equality of chance through the mentioned factors and activities were investigated by a narrative analysis that was conducted by semi-structured interviews. The stories of the participants were recapitulated in narratives according to the Labov model of narrative analysis and then the narratives were compared and divided into 5 types. Each type includes those participants who coincide with the decline, growth or stagnation of quality of life and the experience of sociability. At the end, questions were answered (1) what the lifehistory experiences of deafblind people are related to factors and quality of life activities and (2) which obstacles and problems are associated with their disability in the context of equality of opportunity for quality life.

• Keywords: gluhosljepoća; gluhoslijepe osobe; kvaliteta života; (ne)jednakost šansi
• Keywords (english): deafblindness; deafblind people; quality of life; (in)equality of opportunities
• Language: croatian
• URN:NBN: urn:nbn:hr:111:178816
• Study programme: Title: Department of Sociology; Study programme type: university; Study level: graduate; Academic / professional title: magistar/magistra sociologije (magistar/magistra sociologije)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Open access
• Created on: 2018-09-05 12:06:25